Lipodystrophy UK are ecstatic that NICE has approved metreleptin for the treatment partial and generalised lipodystrophy. We have worked tirelessly with all stakeholders involved in this appraisal to ensure the voice of patients and their carers was heard.
We are grateful to the clinical experts at the National Specialist Treatment Centre at Addenbrooke’s Hospital, Amryt and NICE for their hard work and collaborative spirit throughout the appraisal.
Lipodystrophy UK will continue to advocate for our community to ensure better treatment and care for everyone affected by lipodystrophy.
Hear the breaking news from our founder Becky