Living with lipodystrophy can bring unique challenges, but treatment is not only about medication. There are many ways to support your health, wellbeing and confidence through lifestyle changes, nutrition and holistic care.
Nutrition and Healthy Eating
Because lipodystrophy affects how the body stores and uses fat, a balanced, personalised diet can make a real difference.
- Work with a registered dietitian who understands lipodystrophy.
- Focus on whole foods, lean proteins, healthy fats and fibre-rich carbohydrates.
- Be mindful of portion sizes and avoid excessive amounts of carbohydrates, particularly refined or high-sugar options, as these can worsen insulin resistance.
- Regular monitoring of blood sugar and lipid levels is important for long-term health.
Physical Activity
Physical activity supports better insulin sensitivity, heart health and overall wellbeing.
- Choose activities that feel manageable and enjoyable, such as walking, swimming or cycling.
- A short walk or gentle movement after meals can help regulate blood sugar levels and support digestion.
- Strength or resistance exercises can help improve muscle tone and metabolic health.
- Always check with your healthcare team before beginning a new exercise routine.
Mental Health and Emotional Wellbeing
- Counselling or peer support groups can offer space to share experiences and gain reassurance.
- Lipodystrophy UK provides an online Facebook community to help you connect with others who understand.
- Practices such as mindfulness, relaxation techniques or gentle yoga may help to manage stress and improve sleep.
Body Image and Confidence
Changes in body shape can influence how you feel about yourself.
- Clothing, styling or confidence workshops can help you express your individuality and feel more comfortable in your skin.
- For some people, surgical options may be considered to help with comfort or confidence. Any decision of this kind should always be discussed carefully with a specialist medical team.
Community and Support
You are not alone in living with lipodystrophy.
Lipodystrophy UK offers reliable information, advocacy and emotional support for patients, families and carers.
Join our community to connect with others and learn more about our support network.
