At Lipodystrophy UK, we’re committed to supporting people living with lipodystrophy, their families, and healthcare professionals. On this page, you’ll find downloadable materials and carefully selected external links to support your understanding, diagnosis, and management of lipodystrophy.
We’ll be updating this page regularly, so please check back for new resources.
Downloads
Lipodystrophy UK Information Leaflet
A printable leaflet providing an overview of lipodystrophy, common symptoms, support options, and how we can help.
[Download PDF]
Updated: April 2025
Useful External Links
Understanding Medical Referrals for Rare Conditions
A helpful guide explaining how medical referrals for lipodystrophy work within the NHS, including both self-referrals and referrals made by healthcare professionals.
[Read the guide here]