At Lipodystrophy UK, we’re committed to supporting people living with lipodystrophy, their families, and healthcare professionals. On this page, you’ll find downloadable materials and carefully selected external links to support your understanding, diagnosis, and management of lipodystrophy.
We’ll be updating this page regularly, so please check back for new resources.
Downloads
Lipodystrophy UK Information Leaflet
A printable leaflet providing an overview of lipodystrophy, common symptoms, support options, and how we can help.
[Download PDF]
Updated: April 2025
Useful External Links
Visible Difference Support Hub
A comprehensive online resource offering information, guidance, and support for people living with visible differences.
Visit the Visible Difference Support Hub
ACT It Out® App
An app designed for people aged 16+ who are experiencing psychological or social challenges related to looking different. It uses an evidence-based approach called Acceptance and Commitment Therapy (ACT) to support wellbeing.
Learn more about ACT It Out®
Understanding Medical Referrals for Rare Conditions
A helpful guide explaining how medical referrals for lipodystrophy work within the NHS, including both self-referrals and referrals made by healthcare professionals.
[Read the guide here]
